The University of Sydney

Centre for Disability Studies

Helen Beange was the founder of the Clinic now known as the NSW Developmental Disability Health Unit (DDHU). She is a Public Health Physician, who has had a lengthy career devoted to developmental disability medicine. She was the founder of Association of Doctors in Developmental Disability (ADIDD) and one of the founders of Australian Association of Developmental Disability Medicine (AADDM). She is presently the Editor of the AADDM newsletter. She is a current tutor at the Northern Clinical School, University of Sydney, teaching 3rd medical students in the Personal and Professional Development Course (PPD). She is a member of the Disability Deaths Advisory Committee to the NSW Ombusman.

Research Publications:

Flynn, H. Carmichael, A. & Sutherland, G.R. (1971) Six cases of the Cri-Du-Chat Syndrome. Aust. J. Ment. Ret. 1: 239-245

Beange, H. & Caradus, V. (1974) The Prader Willi Syndrome Aust J Ment Ret 3: 9-11

Beange, H. (1978) Australian Family Physician "What's Wrong with my Child, Doctor, Do You Think He is Slow?" 7 July, 739-794.

Beange, H. (1985) Active Health Promotion, A.A.M.R. Journal, 9, 3-7.

Beange, H. (1986) Fitness and Exercise for Intellectually Handicapped Adults in TADSEM '86, Australasian Seminar on Technology in Sport and Recreation for Disabled People: Proceedings. Pub Technical Aid to the Disabled, Ryde Australia.

Beange, H. (1986) The Medical Model Revisited Australia & New Zealand Journal of Developmental Disabilities, 12, 3-7.

Beange, H. (1986) The Medical Care of Down's Syndrome or "You Don't Have to be Sick to go to the Doctor". Down Syndrome Association of NSW, Newsletter, December 1986: 16-31.

Beange, H. (1987) Australia & New Zealand Journal of Developmental Disabilities, "Our Clients' Health: Their Responsibility or Ours? 13(3) 145-7.

Beange, H. (1988) “Health Issues: Anaemia” Interaction. The Australian Magazine on Intellectual Disabilities, 2 (1) 19.

Beange, H. (1988) "Health Issues: Healthy Skin" Interaction. The Australian Magazine on Intellectual Disabilities, 2 (2) 10-11.

Beange, H. (1988) "Drugs and People with Disabilities" Interaction. The Australian Magazine on Intellectual Disabilities, 2 (3) 9.

Beange, H. (1988) "Making Healthy Choices" Interaction. The Australian Magazine on Intellectual Disabilities, 2 (4) 21.

Beange, H. (1989) "Better Health Awards" Interaction The Australian Magazine on Intellectual Disabilities, 3 (1) 21.

Beange, H. (1989) "Health Issues: Medical Records". Interaction. The Australian Magazine on Intellectual Disabilities, 3 (2) 21.

Beange, H. (1989) "Health Issues: Medical Needs" Interaction. The Australian Magazine on Intellectual Disabilities, 3 (4 & 5) 31.

Beange, H. & Bauman, A. (1990) "Health Care for the Developmentally Disabled. Is it Necessary?" in Key Issues in Mental Retardation Research, pp 154-162. Ed W.I. Fraser, Routledge, London.

Beange, H. & Bauman, A. (1990) "Caring for the Developmentally Disabled in the Community". Australian Family Physician, 19 (10) 1558-1563.

Beange, H. & Bauman, A. (1992) "Levels of Health Risk in a Population Sample of Intellectually Disabled Adults" in Mental Retardation and Medical Care, pp326-332, Ed J.J. Roosendoal, Uitgerij Kerckebosch, Zeist.

Center, J.R., McElduff, A. & Beange, H. (1994) "Osteoporosis in Groups with Intellectual Disability", Australian & New Zealand Journal of Developmental Disabilities, 19 (4) 251-258.

Beange, H. Gale, L. & Stewart, L. (1995) "Project Renourish: A Dietary Intervention to Improve Nutritional Status in People with Multiple Disabilities", Australia & New Zealand Journal of Developmental Disabilities, 20: 165-174.

Beange, H. McElduff, A. & Baker, W. (1995) "Medical Disorders of Adults with Mental Retardation: A Population Study" American Journal on Mental Retardation 99(6) 595-604.

Beange, H. & Taplin, J.E. (1996) "Prevalence of Intellectual Disability in Northern Sydney Adults", Journal of Intellectual Disability Research 40 (3), 191-197.

Beange, H. (1996) "Caring for a Vulnerable Population", Medical Journal of Australia, 164: 159-160.

Beange, H. & Lennox, N.G. (1998) Physical aspects of health in the learning disabled. Current Opinion in Psychiatry. 11: 531-534

Beange, H. Lennox, N.G. & Parmenter, T. (1999) Health Targets for people with an intellectual disability. Journal of Intellectual & Developmental Disabilities. 24 (4), 283-297.

Beange, H. (2002) Epidemiological Issues. In VP Prasher & MP Janicki, (Eds) "Physical Health of Adults with Intellectual Disabilities" (1st edition, pps 1-20). Oxford: Blackwell.

Beange, H. (2004) Power of One: An accidental career in a new discipline MJA 181, 11-12, 620-622

Sandanam, T. Beange, H. Robson, L. Woolnough, H. Buchholz, T. and Smith, A. (1997) Manifestations in institutionalized adults with Angelman Syndrome due to deletion. Am J of Medical Genetics 70: 415-420

Center, J.R. Beange, H. McElduff, A. (1998) People with mental retardation have an increased prevalence of osteoporosis: a population study. Am J on Mental Retardation, 103, 1, 19-28.

Lennox, N.G. & Beange, H. (1999) Adult Healthcare. In Management Guidelines. People with Developmental and Intellectual Disabilities Ed Lennox, N.G. & Diggens, J. Melbourne, 1999.

Dear, W. & Beange, H. (1999) A Review of Recent Applications of Nutritional and Feeding Practices at Institutions for People with Developmental Disabilities. J. of Developmental and Physical Disabilities 11, 2, 131-138

Lennox, N.G. Beange, H. & Edwards, N.S. (2000) The health needs of people with intellectual disability. Medical Journal of Australia 173, 6: 328-320.

Durvasula, S. & Beange, H. (2001) Health Inequalities in People with Intellectual Disability: Strategies for Improvement. Health Promotion Journal of Australia 11, 1, 27-31.

Durvasula, S. Beange, H. & Baker, W. (2002) Mortality of people with intellectual disability in northern Sydney. Journal of Intellectual & Developmental Disability 27, 4, 255-264

McElduff, A. & Beange, H. (2003) Men's health and well-being: testosterone deficiency. Journal of Intellectual & Developmental Disability 28, 2, 211-214

McElduff, A. & Beange, H. (2004) Iodine Deficiency in Australia: be alarmed.

Journal of Intellectual & Developmental Disability 29, 1, 85-87

McElduff, A. Center, J.R. & Beange, H. (2003) Hypogonadism in men with intellectual disabilities: a population study. Journal of Intellectual & Developmental Disability 28, 2, 163-171